dwindling numbers

[maughold]

I would be sorry to see you guys all disband this group. I have
followed you for many years, and though I'm not a poster I read you
often for the latest. I'm sure I'm not the only one. I had
sphenoethmoidectomy at U Penn by Kennedy 2010 with 12 weeks of follow
up and had no infections since, but still have the sticky drainage in
throat, congestion etc. Over the years I've spent $100k on this
disease with osteomylytis in the nasal bone, cysts and polyps removed,
fess etc etc but still get many problems. I read that Sinusitis is
affecting more and more people all the time but we are no nearer a
cure or even satisfactory symptom control. Maybe we'll get lucky.

[Susan]

x-no-archive: yes

Post by maughold
I would be sorry to see you guys all disband this group. I have
followed you for many years, and though I'm not a poster I read you
often for the latest. I'm sure I'm not the only one. I had
sphenoethmoidectomy at U Penn by Kennedy 2010 with 12 weeks of follow
up and had no infections since, but still have the sticky drainage in
throat, congestion etc. Over the years I've spent $100k on this
disease with osteomylytis in the nasal bone, cysts and polyps removed,
fess etc etc but still get many problems. I read that Sinusitis is
affecting more and more people all the time but we are no nearer a
cure or even satisfactory symptom control. Maybe we'll get lucky.

My doctor actually phoned Kennedy and spoke to him about me last year.

Said he was very nice, but doubted very much that I had metal or
problems from it causing my problems and said he probably wouldn't have
a way to help me.

He was half right, I guess.

Susan

[asfyso]

I would be sorry to see you guys all disband this group. I  have
followed you for many years, and though I'm not a poster I read you
often for the latest. I'm sure I'm not the only one. I had
sphenoethmoidectomy at U Penn by Kennedy 2010 with 12 weeks of follow
up and had no infections since, but still have the sticky drainage in
throat, congestion etc. Over the years I've spent $100k on this
disease with osteomylytis in the nasal bone, cysts and polyps removed,
fess etc etc but still get many problems. I read that Sinusitis is
affecting more and more people all the time but we are no nearer a
cure or even satisfactory symptom control. Maybe we'll get lucky.

$100k spent on sinusitis is dizzying...

Apart from this unfortunate figure, I have become convinced from all
the research that has been published in the past years that chronic
sinusitis is, if not always curable in the sense that everyone could
come back to the status quo ante, at least manageable in a majority of
patients. Many members of this group believe that, apart from
allergies, a large number of cases are infectious in origin (biofilm
and/or osteomyelitis) and therefore may respond to sufficiently
powerful anti-infectious treatment. Even in this case, however, there
are remaining problems, like, say, reinfection from any circumstance
resulting in the same or new germs entering the nasal cavity and not
being fought efficiently enough by the immune system.

I suppose you irrigate daily ; if this is the case, you might find
some improvement from gravity draining, ie bending over for several
minutes after irrigation to drain the sinuses by gravity instead of
counting only on the ciliae.

[Susan]

x-no-archive: yes

Post by asfyso
Apart from this unfortunate figure, I have become convinced from all
the research that has been published in the past years that chronic
sinusitis is, if not always curable in the sense that everyone could
come back to the status quo ante, at least manageable in a majority of
patients. Many members of this group believe that, apart from
allergies, a large number of cases are infectious in origin (biofilm
and/or osteomyelitis) and therefore may respond to sufficiently
powerful anti-infectious treatment. Even in this case, however, there
are remaining problems, like, say, reinfection from any circumstance
resulting in the same or new germs entering the nasal cavity and not
being fought efficiently enough by the immune system.
I suppose you irrigate daily ; if this is the case, you might find
some improvement from gravity draining, ie bending over for several
minutes after irrigation to drain the sinuses by gravity instead of
counting only on the ciliae.

If not for the odontogenic infection, the consistent failures of imaging
and doctors who misread imaging that hadn't failed, and neglect of my
complaints, my combination of aggressive allergic desensitization and
FESS along with only occasional irrigation after the post op period
would have been completely successful, even though it left me with some
remaining opacification of uncinate process and Haller cells.

Susan